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What resources are there on Aicardi-Goutières syndrome?

NOTES FROM THE UNITED LEUKODYSTROPHY CONFERENCE, JULY 20-23, 2000 Dekalb, Illinois, USA       1. NEW CASES2. MYELIN CONFERENCES3. WRITE TO ALL A-G AUTHORS4. CALCIFICATIONS AND DIDRONEL5. STEM CELL...

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Are there treatments for Aicardi-Goutières syndrome ?

What treatments are there for Aicardi-Goutieres syndrome? There is no cure for Aicardi-Goutieres syndrome. However, its symptoms can be managed so the child is more comfortable and regression can be...

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What is AGS?

Aicardi-Goutières syndrome is according to humangenetics; a recessive heriditary disease, that means both parents carry the chromosomerror in them selves. Statistically seen the frequency is situated...

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How is Aicardi-Goutières syndrome diagnosed ?

A CT scan of the head will show calcifications in the brain. A spinal tap can confirm the diagnosis by testing spinal fluid for alpha-interferon and for elevated white blood cell levels. Testing for...

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AGS Parental Meeting 2008 in Washington !

        Aicardi-Goutieres Syndrome.   This is an outline of what parents and doctors discussed during the AGS meeting.  This outline is meant to be a continuously improving document.  If any parent or...

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